Nevaeh Hospice

Stroke

In hospice care, stroke patients typically experience a decline in functional status and increased sleepiness as they approach the end of life. This decline can manifest as reduced appetite, increased pain and nausea, and a withdrawal from surroundings. Patients may also show signs of confusion, restlessness, or decreased awareness. 
 
Here’s a more detailed look at the expected decline:

Functional Decline:

  • Decreased Mobility:
Stroke patients in hospice often experience a significant decline in their ability to move and participate in activities. They may become bedbound, requiring assistance with turning and repositioning to prevent pressure sores. 
 
  • Reduced Communication:
Talking and physical activity often decrease significantly. Patients may sleep for long periods and show less responsiveness to their environment. 
 
  • Swallowing Difficulties:
Dysphagia (difficulty swallowing) is common and can lead to malnutrition, dehydration, and aspiration pneumonia. 
 
  • Weight Loss:
Significant weight loss is a concerning sign, as it can indicate a reduced ability to eat and absorb nutrients. 
 
  • Incontinence:
Loss of bowel and bladder control is also common. 

Physical Symptoms:

  • Increased Sleepiness:
Patients may sleep for extended periods, with periods of wakefulness becoming shorter and less frequent. 
 
  • Decreased Appetite:
Reduced food intake is expected and may require adjustments in meal sizes and types. 
 
  • Pain and Nausea:
These symptoms may increase and require careful management with medication and other comfort measures. 
 
  • Breathing Changes:
Breathing may become irregular, shallower, or more labored. 
 
  • Infections:
Increased risk of infections, such as urinary tract infections or pneumonia, is a concern. 
 

Cognitive and Emotional Changes:

  • Confusion and Disorientation:
Patients may experience confusion, disorientation, or even periods of delirium, particularly as they approach the end of life. 
 
  • Withdrawal and Reduced Interaction:
Patients may become more withdrawn, with decreased communication and a preference for solitude. 

Important Considerations:

  • Individual Variation:
The specific trajectory of decline can vary significantly from person to person, according to the Stroke Association
 
  • Symptom Management:
Hospice care focuses on managing symptoms to improve comfort and quality of life. 
 
  • Family Support:
Hospice provides support for both the patient and their family during this challenging time. 
 
  • Individualized Care:
Hospice care is tailored to the individual needs and preferences of each patient. 

If you are concerned about a loved one’s decline in hospice, it’s essential to communicate with the hospice team. They can provide guidance and support as you navigate this difficult time.